She is weary

Day 48:
Some days trying to find something positive to focus on is hard. Today was one of those. The positive is pulling a med last night seemed to help squash the nightmares that were consuming the few minutes of sleep available to Tate. But today was hard.
Tate really struggled with pain as the day went on. The day started with her feeling awful and that was exacerbated by her remicade/rheumatology infusion. Temperature dysregulation continues. It’s hard to know what the source of side effects are as her meds are constantly being changed and titrated. The team tries to do this slowly, but Tate’s body is over it all and most often doesn’t respond as expected.

There is a huge surprise planned for Tate tomorrow. Please pray she can rally even if for a short time. She really is struggling with all this new information, and everything she is dealing with. She is weary and desperately needs a boost.