June 11, 2025
This past week has continued to be a struggle. Most of the week continued with very low BP, and just so sleepy. BP has now normalized but swelling and nausea and fatigue seem worse. Tate had blood cultures drawn again on Tuesday and while they are negative, she ran a fever last night. We’ve had a lot of virtual appointments and Tate has been started on lasix to get some of the fluid off and is being sent back to cardiology to make sure her heart isn’t causing some of these issues.
A couple bright spots….Tate made it to a garden party with Grams and also to her end of year YAC (youth advisory council) party at the hospital. That one was pretty bittersweet for her as it’s another chapter that turning 18 closes. Cousin Luke and his fiancé, Ellie were here and Tate’s Aunt Helen was here for a couple nights too. Keira surprised us all by walking through the door last night.
Tate is definitely worse today but it seems we have a virus in the house, so I’m hoping she’s feeling that and it will quickly pass.