June 18, 2025
This about sums up the last week. Not making it down to the couch at all until just briefly the last two evenings. Just lots of sleep in Tate’s bed. And lots of telehealth appointments for me to catch Tate’s team up on. We do think (hope) this exacerbation of symptoms is solely viral and has just laid Tate out flat. Time will clarify that for us. I’m on the other side and Im still super fatigued, so I can only guess what it’s doing to Tate. Her newest infusion makes it harder for Tate to fight viruses, in addition to all the immunosuppressants she’s on. Ivig is tomorrow and Friday, so hopefully it’ll give her body a positive kickstart.
K unfortunately picked it up while home too and came back from camp last night to kick this quickly so she can get back to those kiddos.