June 20, 2025
Today is day two of IVIG. A post memory from 3 years ago, just past 100 days from Tate’s BMT, had us also on day 2 of IVIG.
3 years ago, after learning we’d have to postpone attending weddings, church and any travel due to Tate’s immune system until late January, This struck me from that post…
”I pointed out to a tearful Tate, it’s improving her health that is keeping us out of things, not progressive Ilness. There’s a huge difference in perspective and the greatest aspect is there’s hope tucked in between all the missed events and opportunities. That’s been missing for so many years. So…tonight we are grateful through the loneliness and isolation that keeps close company on this journey.”
Perspective and reality has changed in those 3 years. We aren’t missing out any longer due to healing, but rather due to progression.
In our current reality, we’ve since added an additional monthly infusion, an intrathecal pain pump, twice daily injections, and a host of additional daily meds. Tate still has a central line, is iv fluid dependent and still has her GJ button in her abdomen. None of this was the plan. And I don’t believe it was God’s plan either. Did he know it would happen….sure. Would he choose this for her? Absolutely not. Our broken world did that. But we know we don’t walk alone.
Yesterday our cups were filled by our North medical family. Through childlife with Lauren, Pringle and Amanda. And our nurses, Emma, Katelyn and a sweet surprise stop in visit from Natalie with her new babe. It’s the ones who are in front of us that can read through the unspoken words and the glossy FB posts of 10 second smiles. They’ve cared for our whole family for years. We are grateful.