March 28, 2026
Day 9 & 10
Some days feel too exhausting to put words together. Yesterday was one of those. We had a day of Tate feeling lousy and problems with her GJ leaking what it shouldn’t be. Wound team was up and didn’t like the whole picture but it also seemed not to be obvious infection. Last night we got AN answer….Tate has C diff again. She also had this back in August when she was hospitalized. It’s a highly contagious bacterial infection in her gut. People will get this sometimes from extended use of antibiotics. It’s not typically a huge issue in those folks (albeit miserable) It can be a bigger deal in the immunocompromised; hard to clear and can cause damage to the gut. Untreated, it can lead to sepsis. Tate is immunocompromised, making her more susceptible, but we’ll likely never know the real source. We are hoping to get it under control with strong antibiotics and that it will help her feel that much better. We know she didn’t come in with it though, so it doesn’t explain everything….just the worsening the last couple days.
This morning was rough with a pain crisis. We’ve been alternating iv and oral pain meds the last 24 hours. This am was a fail that we are hoping to not repeat as we work to get her on all oral meds. It was honestly soul crushing.
We know we’ll be here until at least Tuesday as there’s a care conference late Monday afternoon. Tate will admit back to hospice the day she discharges. That’s unusual, as there’s usually a couple day delay, but it’ll eliminate medication hiccups.
Some days the emotions are heavier than others. This morning was one of those. I’m glad Tim was here but sometimes wish I could protect all the people I love from all the pain.