April 29, 2026

Days 40, 41 & 42

I haven’t had the emotional energy to update more than a surface level positive for a bit now. I am tired. Emotionally done. Most nights I can’t keep my eyes open and completely check out. Some version of sleep is the only escape. And I’m so so grateful when we have familiar night nurses that let me do just that. Even if I’m not sleeping, to just turn over and not have to engage is a relief. It’s not that the past 6 weeks have been so physically exhausting. Being here day after day, conversation after conversation with a revolving door is emotionally draining. Your space isn’t your own. I’m an introvert at heart and my tank is empty. ♥️

Knowing how I feel makes what Tate is able to endure day in and out that much more remarkable. She is able to muster a polite greeting and a smile most of the time. And when she can’t, her sleep mask comes down and she escapes for a bit. This girl is a powerhouse. Resilient beyond words and still has so much love for the people that hold her heart. ♥️ I’m so very proud of who she is. 🥺

On the heels of 3 days of IVIG, Tate experienced more pain today. She was the closest to a pain crisis I’ve seen in quite a few days. Tomorrow is another care conference, this time including Tate’s Dr. with Denver hospice and palliative along with all the current key players here. We’re hoping for a good discharge plan to get us home again. ❤️‍🩹

This photo is Tate in a sweatshirt gifted from TJ from his first Fire Station. They share initials, so it feels made for Tate too. Such a special gift from a loving big brother. ♥️♥️

#tatestribe

#GritAndGrace