May 21, 2025
Today was supposed to be Tate’s new rheum infusion. But after a long phone chat with Tate’s rheumatologist focused on how lousy Tate continues to feel, she sent Tate for blood cultures and labs instead. Rheum infusion is scheduled for next Tuesday barring positive blood cultures.
We aren’t sure whether Tate is still swimming in uncontrolled autoimmune stuff or if this is infection. Labs show inflammation, but that has become such a norm it fails to provide more direction. We are SO grateful to have a team that will order these outpatient and not through the ED. I think theres only been one occasion in recent years where Tate was able to go home rather than be admitted. So we like to avoid that path until absolutely necessary. Now we wait and pray that if a phone call comes, it can wait until morning.